Well we have survived. The house hasn’t burnt down. The house work is being done, well kind of?! and we eat! I would say that’s a success with a newborn. See the thing is, I’ve been kind of waiting for something to go wrong but it hasn’t. Like the best anti climax ever. The health visitors and midwifes have come and gone and now it’s kinda like … that’s it .. no more appointments, hospitals or baby follow ups, just the normal baby follow ups … I guess you could say I officially got the ‘you’re on your own kid’ ticket!
Seven weeks down and I don’t know where the time has gone. I keep looking at my little bean thinking if only I knew then what I know now about how perfect she is … all that poking and prodding, worrying and fret. It could have all been so different in so many ways, but she is here, nearly double her birth weight, happy and content most days :).
However I wouldn’t say we are in a routine just yet, what’s normal anyways at seven weeks. Baby massage every week is fun, if not to have some mommy social time. Cake and tea meet ups have now officially started , which feels appropriate as cake is particularly Crohns friendly, and just general walking up and down to the shops with the pram feels great, proper freedom considering I couldn’t even lift the thing four months ago!
As far as the Crohns goes, it’s still there , never really goes away, but the last seven weeks of joy has been a great distraction! It feels weird that I haven’t had a blood test since 18th August … my veins are freaking out at why they have been left alone for so long. I think my arms are in shock. Just have to keep praying I have no post partum flaring but I think my hormones have shifted (by how much hair I’ve shedded) so I’m hoping I’ve avoided that trigger. The bottle was the greatest decision personally for me as a sick mommy, hats off to all those breast fed babies and moms , it is truly hardcore to keep going through the unpredictability of feeding. For me, the predictable three hours sleep at a time is enough to keep me well to get through the days and keep the body happy, and happy me is happy Isla.
I guess the next challenge is to be completely steroid free, with just the eight weekly infusions to keep me going, but we shall see. Amongst the cake, the chocolate milkshakes are keeping the engine ticking over. Next stop is the hospital on 12th October for drug cycle numero four and an appointment with my surgeon to discuss next steps… I guess regarding those chats though the longer I can stay in my bubble the better …
This week is invisible illness awareness week, for once it’s a little more invisible to me as I feel better …. finally.